International Rett Syndrome Foundation
The International Rett Syndrome Foundation funds research aimed at potential cures for Rett syndrome and empowers families through education. It describes itself as a research, family support and advocacy organization, and maintains a clinic finder, clinical trial information and a resource library covering diagnosis, genetics, treatment and day-to-day care. It also holds an annual conference for families, researchers, industry and providers.
4600 Devitt Dr, West Chester, OH, 45246
Services: Advocacy / Policy; Family Support / System Navigation
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