1p36 Deletion Support & Awareness
1p36 Deletion Support and Awareness supports families of people affected by 1p36 deletion syndrome, a condition that occurs in roughly one in 5,000 to 10,000 births. It provides awareness and education materials, conferences, and an online community, and says it currently serves hundreds of families.
906 Ne Greenwood Ave Ste 1, Bend, OR, 97701
Services: Family Support / System Navigation
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