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The Tbck Foundation
The TBCK Foundation works to advance research into TBCK syndrome, a rare condition, and to support the families it affects through advocacy for rare disease and disability. It shares information about TBCK syndrome and family stories, organizes community support and events, and publishes its material in English and Spanish.
Po Box 13220, Pittsburgh, PA, 15243
Services: Family Support / System Navigation; Advocacy / Policy
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