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Shwachman Diamond Syndrome Foundation INC
The Shwachman-Diamond Syndrome Foundation is a patient advocacy organization for people with Shwachman-Diamond syndrome and their families. It provides family support and connection, newsletters, an online platform where patients and families share experiences, a physician and medical center directory, tools for organizing patient care, and it funds research toward treatment.
Po Box 124, Van Wyck, SC, 29744
Services: Family Support / System Navigation; Advocacy / Policy
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