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Resources and data

Medical Complexity: key contacts and numbers by state

The statewide agencies and networks people usually need first, and the numbers behind the Atlas for your state.

More for this area

Coming soon

Medicaid for children with medical complexity

Each state's programs that pay for home nursing, medical day care, and equipment for children with complex medical needs, including waivers that do not count parents' income. Planned.

Coming soon

Compare states

Side by side numbers for two or more states, for families weighing a move.

Where these contacts come from

SourcePublisherListings
State Assistive Technology Act ProgramsNational Assistive Technology Act Technical Assistance and Training (AT3) Center51
IDEA Part C Early Intervention Lead AgenciesEarly Childhood Technical Assistance (ECTA) Center51
NDRN Protection and Advocacy Member AgenciesNational Disability Rights Network (NDRN)64
Parent Training and Information Centers and Community Parent Resource CentersCenter for Parent Information and Resources (CPIR), funded by U.S. Department of Education OSEP89
Children's Hospital Association Hospital DirectoryChildren's Hospital Association230
State Title V CYSHCN programsHRSA Maternal and Child Health Bureau, Title V Information System51
Family-to-Family Health Information CentersFamily Voices55
Ronald McDonald HousesRonald McDonald House Charities chapters126

Every data source in the Atlas